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baasheepThese past few days have been pretty tough. I called around to his folks house on thursday to pay my respects and there were so many people there. His poor fiancee was still in shock and sat curled into the couch not really aware of her surroundings. Then the removal on Friday, it was standing room only, at least 450 people turned up. The service was short as it always is and Bridezillas husbands uncle who is a priest said the decade of the rosary. It was bittersweet. Last month he was marrying bridezilla and her husband in greece. This month its her brothers funeral. Then back to her folks house where we traded stories of B and how gross he could sometimes be lol (like the time he hooked a beer keg up to the feding tube in his stomach, sober to drunk in less then 2 mins!)it was a good night although several people myself included we nearly expected B to come into the room and give his side of the gross story. Its still so hard to believe he's gone.
Saturday, well saturday was the hardest of all. Again there was a huge turnout, standing roon only again. G his Dad started the funeral with a speech about his son. Everyone listened as he told us when B was diagnosed with CF at 10 weeks old the Doctors told them he would be lucky if he made it another six weeks. Twenty five years is pretty good going he said. Well I guess when you are given a diagnosis like that every day is a gift. He told us about B and how he always helped to raise awareness about CF and had no problem telling his own story especially to those who were of a slightly squeamish nature lol. He met the minister for health a little while ago with some other CF patients and managed to secure a special CF unit in our local hosptial which is a huge step. He also put forward his arguement for the opt-out system of donors (bascially its a system where every one is automatically a donor, no need for donor cards and if you wish to opt out you can) which makes so much sense. So many people say they are willing to be a donor but when it comes down to it they never have the conversation with their family or have much knowledge about donor cards. It was B's wish the donor cards would be available at his funeral and they were. Both days. 300 cards each day. All were taken. So potentially there are 600 new donors as a result of B. If anything good was to come out of his death this is it.
The saddest and most poigient thing of all was a letter from B. When he was taken to ICU the last time he realised he may not bounce back again. So he composed a letter on his phone. K his finacee found it after he passed and read it out. In it he thanked his parents for raising him, recounted a few funny stories, told Bridezilla her and her husband would make fantastic parents and Ken that he was the best brother (Ken's gf has CF and is on the transplant list too. It was pretty harrowing for him knowing what might lie ahead again) B thanked everyone who looked after him and said he was so tired of fighting and he knew it would all be over soon and he would be watching down. His coffin was carried out to Guns n' Roses knocking on heavens door which was a favourite song of B's. Then to the graveyard where again a huge turnout. A dove was released and 65 roses (a symbol of cystic fibrosis) where dropped onto his coffin. The priest said a few words then the cover was placed over the earth and it was all over. We all stood there for a few minutes paying respects to his folks not quite sure what to do when the decision was made for us. Monsoon rain fell from the sky and everyone scattered. A sign from B to get the show on the road perhaps?
We spent the restr of the day in a hotel the Bridezilla and her husband had reserved for their wedding party which would have been last saturday. We ate, laughed, cried and remembered B.
Saturday, well saturday was the hardest of all. Again there was a huge turnout, standing roon only again. G his Dad started the funeral with a speech about his son. Everyone listened as he told us when B was diagnosed with CF at 10 weeks old the Doctors told them he would be lucky if he made it another six weeks. Twenty five years is pretty good going he said. Well I guess when you are given a diagnosis like that every day is a gift. He told us about B and how he always helped to raise awareness about CF and had no problem telling his own story especially to those who were of a slightly squeamish nature lol. He met the minister for health a little while ago with some other CF patients and managed to secure a special CF unit in our local hosptial which is a huge step. He also put forward his arguement for the opt-out system of donors (bascially its a system where every one is automatically a donor, no need for donor cards and if you wish to opt out you can) which makes so much sense. So many people say they are willing to be a donor but when it comes down to it they never have the conversation with their family or have much knowledge about donor cards. It was B's wish the donor cards would be available at his funeral and they were. Both days. 300 cards each day. All were taken. So potentially there are 600 new donors as a result of B. If anything good was to come out of his death this is it.
The saddest and most poigient thing of all was a letter from B. When he was taken to ICU the last time he realised he may not bounce back again. So he composed a letter on his phone. K his finacee found it after he passed and read it out. In it he thanked his parents for raising him, recounted a few funny stories, told Bridezilla her and her husband would make fantastic parents and Ken that he was the best brother (Ken's gf has CF and is on the transplant list too. It was pretty harrowing for him knowing what might lie ahead again) B thanked everyone who looked after him and said he was so tired of fighting and he knew it would all be over soon and he would be watching down. His coffin was carried out to Guns n' Roses knocking on heavens door which was a favourite song of B's. Then to the graveyard where again a huge turnout. A dove was released and 65 roses (a symbol of cystic fibrosis) where dropped onto his coffin. The priest said a few words then the cover was placed over the earth and it was all over. We all stood there for a few minutes paying respects to his folks not quite sure what to do when the decision was made for us. Monsoon rain fell from the sky and everyone scattered. A sign from B to get the show on the road perhaps?
We spent the restr of the day in a hotel the Bridezilla and her husband had reserved for their wedding party which would have been last saturday. We ate, laughed, cried and remembered B.
